Support Group Archives

Results of the 2016 Dingbats Competition

Many thanks to our sponsor:
Stratajet

Thank you to everybody who took part. There were 7 all correct entries received and the winner was drawn on Saturday, 4 June at the WDSG-UK committee meeting.

Answers and the winner can be found by clicking on the image and downloading the results document.


Wilson’s Disease Support Group Annual Meeting - 2016

WDSG-UK-Meeting-2016Download a summary of our July 2016 meeting in Cambridge.


Wilson’s Disease Support Group Annual Meeting - 2015

WDSG-UK-Meeting-2015Download a summary of our July 2015 meeting in Cambridge.


Wilson’s Disease Support Group Annual Meeting - 2014

WDSG-UK-Meeting-2014Download a summary of our July 2014 meeting in Cambridge.


Wilson’s Disease Support Group Annual Meeting - 2013

WDSG-UK-Meeting-2013Download a summary of our July 2013 meeting in Cambridge


Support Group Annual Meeting, 2012 - Summary

For once this summer’s rain had relented and Sunday, July 15th was a relatively dry day for the WDSG-UK Annual Meeting. Our venue was again the Cambridge Rugby Union FootballClub in Grantchester Road, where Linda and Valerie welcomed the many Group members, old and new, who included for the second year Allie Johnston and her mother, Rita, from Edinburgh. Also, we were pleased to be joined by Malin Lundberg and her friend Camilla who had travelled from Stockholm to be with us. The Group’s links with Addenbrooke’s Hospital remain strong. Current staff members Dr Bill Griffiths, Consultant Hepatologist, Dr Richard Sandford, Honorary Consultant in Medical Genetics and Dr George Mells, Clinical Reader in Hepatology attended together with Dr John Walshe and Kay Gibbs, who were previously attached to the Department of Medicine at Addenbrooke’s. Our Medical Advisers were augmented by the presence of Dr James Dooley, Consultant Hepatologist at the Royal Free Hospital, London.

The morning’s proceedings began with a summary by Dr Rupert Purchase of the Group’s involvement over the last year with EuroWilson and with Rare Disease UK. The UK government published a Plan for Rare Diseases in 2012, and WDSG-UK has taken part in the Consultation exercise for this Plan. Rupert emphasised the importance to patients of having WDSG-UK there to represent their interests as new policy issues and networks for rare diseases emerge.

Following Rupert’s talk, Dr Richard Sandford gave an eloquent presentation on the genetics of Wilson’s disease, and the role of molecular genetics as a diagnostic tool for detecting mutations in the ATP7B gene.

Lunch was followed by a raffle (organised by Belinda Diggles) and the formalities of the 2nd WDSG-UK AGM. The current Management Committee was re-elected for the year 2012- 2013 and a new committee member, Mary Fortune, was co-opted. Univar’s generous support of WDSG-UK was re-emphasised by a donation presented by Ray Estall. Then to our great delight, Allie Johnston came forward and presented the Group with a very generous cheque.

WDSG-UK President Dr John Walshe completed the day’s presentations with an account of the treatment of Wilson’s disease. This successful meeting concluded with questions for the medical consultants followed by Group photographs, taken inside the clubhouse this year (by Barry Diggles) against the backdrop of the flooded rugby fields outside.

Rupert Purchase July 2012


Support Group Meeting – Cambridge – Sunday 10 July 2011

Cambridge’s Rugby Union Football Clubhouse was again the venue for the 2011 meeting of WDSG-UK, which was well supported by Group members, their families and friends. We were particularly pleased to see Allie Johnston and her mother, who had travelled down from Edinburgh, and Kay Gibbs and Dr James Dooley. WDSG-UK has strong links with the British Liver Trust (BLT) and Richard Hall, the Support Group Co-ordinator there, gave us an introductory talk in the morning about the work and aims of the Trust. After lunch Dr John Walshe presented a short historical and insightful account of Wilson’s disease and its treatment.

A revised constitution for WDSG-UK was submitted to HMRC last year as part of the Group’s successful application for charitable status. One of the requirements of the constitution is to hold an Annual General Meeting and to elect (or re-elect) a management committee. After Dr Walshe’s talk the first AGM of WDSG-UK was held. Dr Rupert Purchase reported on developments over the last year, Valerie Wheater presented the accounts for 2010/2011, and a management committee was elected unanimously for the year 2011/2012. A short discussion about future activities of WDSG-UK then merged with more specific questions on Wilson’s disease for Drs Walshe and Dooley, before the meeting closed with the customary raffle and Group photograph.

Rupert Purchase

July 2011