Associations & Groups
British Liver Trust
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British Liver Trust
The British Liver Trust is the national charity for adults with liver disease.
Now providing a useful downloadable publication.
Childrens Liver Disease Foundation
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Childrens Liver Disease Foundation
Formed in 1980, Children’s Liver Disease Foundation is the only UK charity dedicated to fighting all childhood liver diseases.
Wilson’s Disease Association International (USA)
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Wilson’s Disease Association International (USA)
This site provides extensive information about Wilson’s disease, but does not provide medical advice.
Contains
- Information about Wilson’s Disease
- Information about the Wilson’s Disease Association (USA)
BASL Wilson’s Disease Special Interest Group
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BASL Wilson’s Disease Special Interest Group
Wilson’s Disease is now part of the British Association for the Study of Liver Disease, Rare Diseases Special Interest Group (SIG). The SIG is linked to the Metabolic CRN topic area, and the SIG Lead is Dr Bill Griffiths, Consultant Hepatologist, Addenbrookes Hospital, Cambridge.
Wilson’s Disease was the first SIG to be established by BASL. The Wilson’s Disease Group comprises a variety of clinical and laboratory specialists from around the UK, Public Health England and patient representation from the Wilson’s Disease Support Group. It aims to foster closer collaboration for clinical and scientific research, provide a forum to discuss and disseminate best practice, and act as a stimulus towards Centres of Excellence for Wilson’s disease. The group has met four times thus far: December 2017, June 2018 and twice in 2019. Reports from meetings are made available along with presentation slides.
