Medical Articles

All articles are available to download further down this page

APRIL 2022

Definitive works on the management and treatment of Wilson’s disease in the UK, but for access across the world.
 

  • Wilson’s Disease Guidance Document:  The Management and Treatment of Wilson’s Disease by the BASL RDSIG (the British Association for the Study of the Liver, Rare Diseases Special Interest Group)
    All you need to know about the recognised management and treatment of Wilson’s disease in the UK.
    Full document published April 2022
     
  • Investigation and Management of Wilson’s Disease:  A practical guide from BASL RDSIG (the British Association for the Study of the Liver Rare Diseases Special Interest Group):
    An abridged article published in The Lancet –  Gastrology and Hepatology:  April 2022

Educational Resources

The late Dr Alan Stevens, retired consultant pathologist and medical author, very kindly wrote a series of medical articles for our newsletters explaining to patients in simple terms the possible effects of Wilson’s disease on the body.

These articles are a good introductory educational resource and are divided as follows:

  • The liver
    • What are LFTs? (Liver Function Tests)
    • The Normal Liver
    • Cirrhosis of the Liver
    • Oesophageal Varices
  • The Brain in Wilson’s disease
  • Complications in the treatment of Wilson’s disease
    • Elastosis Perforans Serpiginosa (EPS)

Articles by other Authors

  • Gene Therapy for Wilson’s Disease – 2021 – Dr Mary Fortune and Professor Graeme Alexander 
  • Animal Models of Wilson’s disease – 2017 – Dr Emily Reed and Professor Oliver Bandmann
  • The Eyes in Wilson’s disease – 2015 – Dr Susan Mollan

The Genetics of Wilson’s disease

  • Genetic Mutations in Wilson’s Disease – 2015 – Dr Mary Fortune
  • Genetics of Wilson’s Disease – 2013 – Professor Oliver Bandmann
  • Wilson’s disease is a genetic condition – 2013 – Dr Richard Sandford

How is WD diagnosed in the laboratory?

  • Laboratory Tests in the Diagnosis and Monitoring of Wilson’s disease 2019 – Dr Chris Harrington

01. Cognition, MRI and Wilson’s Disease – CROWD Study Update (2023)

Dr Samuel Shribman and Miss Maggie Burrows (March 2023)

02. Investigation and Management of Wilson’s Disease: A Practical Guidance From BASL RDSIG (April 2022)

An abridged article published in The Lancet – Gastrology and Hepatology: April 2022

03. Wilson’s Disease Guidance Document: The Management and Treatment of Wilson’s Disease by the BASL RDSIG (2022)

All you need to know about the recognised management and treatment of Wilson’s disease in the UK. Published April 2022

04. Gene Therapy for Wilson’s Disease (2021)

Dr Mary Fortune and Professor Graeme Alexander

05. The Brain in Wilson’s Disease – A Basic Account (2018)

Dr A Stevens

06. Animal Models of Wilson’s Disease (2017)

Dr Emily Reed and Professor Oliver Bandmann

07. Elastosis Perforans Serpiginosa (2017)

Dr A. Stevens

08. What are “LFTs?” (2016)

Dr A. Stevens

09. Wilson’s Disease Seen in the Eyes (2015)

Dr Susan Mollan

10. Cirrhosis – A Simplified Outline (2015)

Dr A Stevens

11. Genetic Mutations in Wilson’s Disease (2015)

Dr Mary Fortune

12. The Normal Liver – What does it do? – A Simplified Guide (2014)

A.Stevens

13. Oesophageal Varices – A Simplified Guide (2013)

Dr A.Stevens

14. Genetics of Wilson’s Disease (2013)

Professor Oliver Bandmann

15. Wilson’s Disease is a Genetic Condition (2013)

Dr Richard Sandford

16. Laboratory Tests in the Diagnosis and Monitoring of Wilson’s disease (2019)

Dr Chris Harrington