Wilson’s Disease Multi-Disciplinary Clinics
WDSG-UK works closely with the WD specialists in the following clinics.
Should you be an adult, newly diagnosed WD patient with a neurological presentation, then it is highly recommended that you seek an appointment as soon as possible with an experienced WD neurologist and his/her team, such as Dr Sam Shribman at The National Hospital, Queen’s Square, London or Prof Oliver Bandmann at the Royal Hallamshire Hospital, Sheffield.
Adult Clinics
The Birmingham WD Clinic
Dr Andrew Holt (Consultant Hepatologist) and Dr David Nicholl (Consultant Neurologist) hold regular one-stop Wilson’s disease clinics in the Centre for Rare Diseases at University Hospital Birmingham. This clinic offers patients the opportunity to have their management reviewed by a hepatologist and a neurologist at the same time and is intended to supplement otherwise established care. Referrals should be addressed to the clinic manager, Richard Bayley, Richard.Bayley@uhb.nhs.uk, or to Dr Holt’s PA, Ms Maria Del Vecchio, Maria.DelVecchio@uhb.nhs.uk
For older teens under the care of Birmingham Children’s Hospital, Ms Catherine Stewart, the Young Adult Nurse Specialist, is happy to be contacted at Catherine.Stewart@uhb.nhs.uk and will help you make an appointment in the clinic.
The Cambridge WD Clinic
Dr Bill Griffiths (Consultant Hepatologist) and Dr Paul Worth (Consultant Neurologist) run a joint clinic at Addenbrooke’s Hospital, as required on a Wednesday morning, for patients with neurological manifestations of Wilson’s disease. Dr Griffiths sees a number of patients with hepatic-only disease separately on Thursday mornings in his adult genetic liver clinic. Referrals from clinicians can be made to Dr Griffiths at the Liver Unit, Box 210, Cambridge University Hospitals, Hills Road, Cambridge CB2 0QQ.
The Leeds WD Clinic
Dr Joanna Moore (Consultant Hepatologist) and Dr Jeremy Cosgrove (Consultant Neurologist) run a joint clinic for patients with Wilson’s disease at St James’s University Hospital, Leeds. This currently runs on a Thursday morning. Referrals from clinicians can be made to Dr Moore at the Leeds Liver Unit, Merville Building, Beckett Street, Leeds LS9 7TF or Dr Cosgrove at the Department of Neurology, F Floor, Martin Wing, Leeds General Infirmary, LS1 3EX.
The National Hospital, Wilson’s Clinic, Queen Square, London
A dedicated Wilson’s disease clinic has been held at University College Hospital for the past 39 years. It was set up in 1987 by Dr John Walshe after his retirement from Addenbrooke’s Hospital, Cambridge. Dr Godfrey Gillett attended from the mid-1990s and ran the clinic after Dr Walshe stepped down in 2000 at the age of 80.
Later, the clinic was moved to the National Hospital for Neurology and Neurosurgery, Queen Square, continuing the long tradition of care for patients with Wilson’s disease, which began in 1913 with Dr Samuel Kinnier Wilson.
Today, the clinic has ~70 patients and is held on the third Friday of the month. Dr Sam Shribman joined the team in 2017 and now runs the clinic with the support of Dr Godfrey Gillett and Miss Maggie Burrows, Specialist Nurse.
The clinic also benefits from access to the Neuropsychiatry, Neuro-Ophthalmology, Speech and Language Therapy, Physiotherapy and Vocational Rehabilitation services at NHNN. Referrals from across the UK are welcome, addressed to Dr Sam Shribman, Charles Dent Metabolic Unit, Internal Mailbox 92, NHNN, Queen Square, London WC1N 3BG, uclh.metabolic.enquiries@nhs.net.
The Sheffield WD Clinic
The Sheffield clinic is jointly run by Prof Oliver Bandmann (Consultant Neurologist), Dr Barbara Hoeroldt (Consultant Hepatologist) and Dr Godfrey Gillett (Consultant in Clinical Biochemistry and Inherited Metabolic Disease). Clinics take place every six months at the Royal Hallamshire Hospital, Sheffield, on a Tuesday afternoon.
Patients may be seen in interim clinics by arrangement. Referrals should be addressed to Prof Oliver Bandmann, Department of Neurology, Royal Hallamshire Hospital, Glossop Road, Sheffield, S10 2JF. Either GPs or hospital specialists may refer to this clinic.
Children’s Clinics
WD Clinic for Children and Young Adults at King’s College Hospital, London
There is a multidisciplinary team Wilson’s disease clinic for children and young people at King’s College Hospital, which is run by Prof Anil Dhawan (Paediatric Liver), Dr Tammy Hedderly (Paediatric Neurologist), Dr Jemma Day (clinical psychologist) and Ms Bethany Tucker, advanced nurse practitioner (ANP) in children’s liver disease.
The clinic is directed at patients who are complex with both liver and neurological involvement. Referrals should be made via the Paediatric Liver Centre at King’s or enquiries sent to Lucia DeBiase lucia.debiase@nhs.net, PA to Prof Dhawan or to Dr Tammy Hedderly Tammy.Hedderly@gstt.nhs.uk.
