Wilson’s Disease Awareness Day 2025Each year on December 6th, the global community marks Wilson’s Disease Awareness Day, commemorating the birthday of Dr. Samuel Kinnier Wilson—the neurologist who first described the rare genetic disorder that now bears his name. This...
The 15th WDSG-UK AGM and get-together will take place for members in Cambridge on Sunday, 20th July 2025.
This meeting will be open to members of WDSG-UK only.
The latest Newsletter and all previous newsletters are available to download on this website.
New Donations Website (2025)GoodHub GoodHub (formerly InvestMyCommunity) is now collecting donations on our behalf and provides a fundraising platform for people wishing to raise funds for us. For those wishing to continue supporting us in this way, The Wilson's...
Each year on December 6th, the global community marks Wilson’s Disease Awareness Day, commemorating the birthday of Dr. Samuel Kinnier Wilson—the neurologist who…
Wilson’s Disease Support Group UK has produced an Educational Video focusing on the Key to Early Diagnosis. Hosted by Dr William JH Griffiths, PhD FRCP, chairman of WDSG-UK.
Cufence® 200mg Hard Capsules Storage ConditionsStatement by Univar, manufacturers of Cufence® (Dec 2023) Cufence® 200mg hard capsules storage conditions Information for patients who have been prescribed Cufence. Cufence® 200 mg (trientine dihydrochloride 300 mg) is a...
Patient Survey Invitation - Orphalan (NOV 2023)Patient Survey Invitation - Orphalan (NOV 2023) Open to WD patients who have not received a liver transplant WDSG-UK has been asked by Orphalan, a Pharmaceutical Company, to provide access to the following patient...
Clinical Trials for Wilson's Disease Clinical Trials of Investigational Medical Products (CTIMPs) for Wilson's Disease Comprehensive details about Clinical Trials, past, present and future, can be accessed through the website https://clinicaltrials.gov/. Simply type...